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Notably, afamelanotide has received regulatory approval in Europe (Scenesse) for the prevention of phototoxicity in adults with erythropoietic protoporphyria providing a robust clinical research dataset

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New Medicare and Medicaid access programs could also make a difference, but the details will matter: eligibility, prior authorization, which drugs are included, and whether state Medicaid programs participate

Giamberardino MA, Dragani L, Valente R, Di Lisa F, Saggini R, Vecchiet L

PMC 2494880